At MSWA, we are privileged to support thousands of Western Australians living with neurological conditions.
Our community generously share their stories to inspire others and shine a light on what it is like to live with a neurological condition. Whilst their journeys involve challenges, it is through determination, humour and support that they are living meaningful and positive lives.
Neil lives in one of MSWA's high support accommodation facilities. Since moving in, Neil has led a more independent and active social life. And, the 24-hour care gives his parents piece of mind.
Neil’s father says, “He’s out doing different things every day…now if we want to see him, we have to make an appointment!”
After having a stroke in 2009, Lyndee Aspey was confined to a wheelchair. Lyndee was cared for in a nursing home before moving to one of MSWA’s high support accommodation facilities in Fern River, living among people her own age.
She gets to do things she loves, like spending time with her adored granddaughter.
Ilissa has been an occupational therapist at MSWA for over six years. She’s passionate about yoga, walks with her dog and helping people living with multiple sclerosis and all neurological conditions live the best lives they can.
“I really enjoy helping people get back to what they love doing and what’s meaningful for them.”
Jennifer Egerton-Warburton was diagnosed with MS in 1998. Her condition is well-managed and she requires low support from MSWA, but in 2018 decided to raise money to support MSWA’s vital research and direct care of others living with neurological conditions in Western Australia.
Margaret was diagnosed with MS in 1999. She was 29 and she and husband, Greg, were living in Melbourne. Margaret was suffering from optic neuritis, but didn’t have a GP in Melbourne and put off going to get it checked out. However, when she lost sight in one eye, she booked an appointment and was sent for further tests.
Lilia was diagnosed with MS in 2017 at the age of 33. She had suffered with severe vertigo three years previously. She now knows this was likely to be her first attack, although doctors were dismissive at the time.
In 2001, just 19 days after celebrating the new Millennium, Susara Street (Sue) took a strange turn on her lunchbreak. Working as a PA to an importer/exporter at the time, Sue was lucky to be discovered quickly – her boss often worked abroad but happened to be in the office that day.
Michelle has always been crafty and in particular, loved to sew when her kids were young. When multiple sclerosis (MS) led to a weakness in her left side, she began favouring crafts that didn’t require the use of two hands.
Wendy and her family managed her condition at home for many years, but in 2014 made the decision for Wendy to move in to MSWA supported accommodation at Fern River. It was a huge decision, but Wendy says she doesn’t look back.
Philip has felt cautious in public since 2015, when he began experiencing problems with his balance. He recalls wobbling and falling over on his daily commute to Gloucester Park, where he worked in accounts. Tests revealed a neurological condition, the exact nature of which is still under investigation.
Denise Amato was leading a very busy life in 2011, running a small business with her husband and looking forward to future travel plans, when, at the age of 56, she started experiencing fatigue and muscle weakness in her legs and the left side of her body.
Steve and Ann raised their daughters – Jennifer, Ashleigh and Courtney – in their gorgeous family home of 30 years, in Bull Creek.
It was in his early 50s that Steve started experiencing a twitching in his eyes, then some involuntary arm movements. Investigations by the GP and various psychiatrists put it down to stress. Due to the lack of family history, no one picked up that it might be the result of an underlying neurological condition.
When Yolanda was in high school, she inexplicably lost her night vision, her grades dropped and her walking gait changed. The tests done at the time didn’t pick up the underlying neurological condition, but she now knows that this was the beginning of her 20-year journey with MS.
MSWA Rockingham Client, Charles, who has been using one of the three Fightmasters MSWA was able to purchase last year, greatly attests to the benefits of boxing in managing his Parkinson’s symptoms. So much so, that he and his family were inspired to hold a community fundraiser to enable MSWA to purchase a fourth Fightmaster for one of our Services Centres.