The school holidays are a time for connecting with loved ones and taking a break from the stresses of the past year.
But for families like Lilia’s, they have something else on their mind - the uncertainty of the future living with multiple sclerosis (MS) or another neurological condition. When Lilia was diagnosed with MS a few years ago, she had nine-month-old twins and a two-year-old daughter.
She felt angry and worried about how she was going to look after her three children as there is no cure for MS.
"I did not cope well with my diagnosis initially – it took a very long time for me to accept I had MS and I took my time reaching out to MSWA."
You can make sure families like Lilia’s have hope about what the future holds living with a neurological condition.
A gift today will help fund cutting-edge neuro research right here in Western Australia
Lilia had suffered with severe vertigo three years previously. She now knows this was likely to be her first attack, although doctors were dismissive at the time. When Lilia suffered numbness that quickly spread, her doctor scheduled an MRI and soon after a neurologist diagnosed her with relapsing-remitting multiple sclerosis (RRMS).
‘‘When I was diagnosed with MS in 2017 at the age of 33, I was initially relieved as it seemed less scary than the other possibilities that might explain my symptoms”, Lilia said. “It also validated what I was going through was real and I could seek treatment to help manage my symptoms.”
Fatigue and dizziness make everyday tasks, like looking after her three young children, very challenging for Lilia. Simple tasks can leave Lilia exhausted, but she works hard to create precious memories.
YOUR DONATION COULD HELP TO FUND CUTTING-EDGE TECHNOLOGY LIKE THE MINDPOD DEVICE
The first of its kind in Australia, Mindpod is a ground-breaking device being trialled by Edith Cowan University, and proudly funded by MSWA.
Mindpod allows users to feel as if they are playing a game – they take the role of a dolphin and ‘swim’ around using their arms. The aim is to keep away from a virtual shark! Watch the video to see how it works.
This game has been proven to be an effective form of therapy. The continual movement enables participants to strengthen their upper limbs and improve nerve function. It is brilliant to see a new and engaging therapy making a real difference.
Your tax deductible donation will make a difference.
MSWA is proud to be Australia’s biggest contributor to neurological research, but we couldn’t do it without your generosity.
By donating you enable MSWA to be there when people like Lilia need us. Together we’re helping her enjoy life with her three young children. Together we’re looking for better therapies, pioneering treatments and hopefully, one day, a cure.
A donation toward our research will assist us supporting individuals, their families and future generations living with a neurological condition.
We would like to thank you in advance for your kind help.