How to tell people about your neurological condition diagnosis
How do I talk about my diagnosis?
If you’ve just been diagnosed with a neurological condition, you may experience a range of emotions. Chances are you won’t know a lot about your condition at this stage, so telling others about it may not be easy.
Was a close friend or family member there when you received your diagnosis?
There’s a well-known saying: 'A problem shared is a problem halved'. Just having someone you trust to talk to can be a great comfort.
Before you share your news more widely, be sure you feel ready to talk about it. You may be more comfortable sharing once you understand your condition better.
To help you, your family and friends, MSWA provides information about neurological conditions to Living Well After Diagnosis.
Who should I tell first?
The closer the relationship, the more your loved one could be impacted by your condition. It’s your choice as to when and how to break the news, but generally, being open with those closest to you is the best policy.
Like you, they will need time to adjust. They may be apprehensive about the future, uncertain as to how your journey with a neurological condition will affect you and them.
If you have children, they may be too young to understand fully about what’s happening to Mum or Dad. However, even the youngest child may pick up that something’s not right with Mum or Dad. Try to tailor your conversation to the age of the child and look for ways to focus on the positive.
Your friends might feel awkward, not knowing how to talk to you or include you in activities.
If you have a job, you may be especially nervous about telling your employer. You may be wondering what considerations you can ask for, and whether your manager will be supportive.
Where can I get help?
MSWA specialises in supporting people living with neurological conditions. We’re dedicated to helping people live the best lives they can after diagnosis. MSWA and our team of 1,000 professional staff are skilled, experienced and ready to support you through this journey.
Our website is a helpful starting point for facts about some of the most prevalent neurological conditions along with resources and tools to help you understand more about your condition and deal with your diagnosis.
For more information and to get started with your services fill out the contact form on our Newly Diagnosed page.
