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MSWA arrives in Butler

MSWA is proud to announce the official opening of a new $8m Service Centre and Supported Accommodation facility for people living with a neurological condition in Butler and surrounding areas.

MSWA supports Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability

Read the full article here.

School in regional WA top fundraisers for MS Readathon

This year was another stellar year for the MS Readathon, with Dampier Primary School coming out on top as the biggest fundraiser in WA.

MSWA supports WA’s stroke community

Fundraisers who chose to support our Stroke community at our last Ocean Ride and Step up events, have raised money that has gone towards purchasing equipment for the State Neuro Rehab Ward at Fiona Stanley Hospital (FSH).

SBS Insight Program on living with MS

Last night’s SBS Insight episode on people with MS covered many topics and shared perspectives from people with MS, and their carers, as well as neurologists and researchers.

Meeting the needs of people living with MS, their families and Carers

MS Australia has released findings of a national research study: Living with Multiple Sclerosis in 2019.

MSWA supports Huntington’s community

Thanks to the support of our fundraisers who participated in MSWA Ocean Ride and Step Up for MSWA last year, MSWA has been able to purchase several pieces of new equipment for the Neurosciences Unit (NSU) at Graylands Hospital.

Living proof that music has sound healing properties

Professional Musician Brett Johns, who has been living with MS for nearly two decades, believes music gives him the strength to cope.

MSWA invests in equipment for Parkinson’s community

Funds raised by participants in the 2018 MSWA Ocean Ride have purchased over $17,000 worth of vital equipment for the Parkinson’s service at Fremantle Hospital.

MSWA to invest a record $3.5m into research

MSWA will set a new benchmark this year with a record $3.5 million going towards scientific research.

MSWA funds motor neurone disease (MND) research

MSWA funded researcher Dr Sarah Rea is working towards a strategy for sporadic cases of MND, a life-limiting neurological condition with no known treatment or cure.

Advocating for a palliative approach to care for MND family carers before and after bereavement

MSWA is proud to fund Professor Samar Aoun’s latest neurological research into the current support systems available for those who have lost a loved one to Motor Neurone Disease (MND).

MSWA invests in vital equipment for motor neurone disease (MND) community

Funds raised by participants in last year’s MSWA Ocean Ride have gone towards purchasing vital equipment to support people living with motor neurone disease (MND).

MSWA Board member honoured with Order of Australia

MSWA Board Member Professor Bill Carroll was this week announced as a Member of the Order of Australia for his significant service to neurological medicine, and to people with Multiple Sclerosis (MS) as part of the 2019 Queen’s birthday honours.

PBS approved generic options now available for some MS treatments

From 1 June 2019, generic medications may become available for the current MS disease modifying therapies prescribed in Australia.

MSWA funded researcher finds link between red meat and reduced risk of MS

MSWA funded researcher Dr Lucinda Black has just published her latest research results which look at how consuming unprocessed red meat may reduce the risk of MS.

MSWA gives a voice to Western Australians living with multiple sclerosis

To acknowledge World MS Day, MSWA will host its annual ‘Hip Hop Yoga’ event – a yoga class for music lovers hosted by the ‘Queen of Hip Hop Yoga’, Kaye Waterhouse of Vital Beat Yoga, on the courtyard of RAC Arena.

The nightingales of MSWA’s nursing generation

International Nurses Day, Sunday May 12, is an opportunity to celebrate the fantastic work our MSWA nurses do for people living with all neurological conditions.

New drug approved to treat children with MS

The Therapeutic Goods Administration (TGA) has approved Gilenya (fingolimod) for the treatment of children and adolescents 10-17 years old with relapsing forms of multiple sclerosis.

MSWA partners with the West Coast Eagles

We’re excited to be partnering with West Coast Eagles to support the WA community. Read about the important work that we do and get a chance to be an Eagle for a day!

European Medicines Agency (EMA) - Review underway for MS Drug Lemtrada®

Following a warning late last year, European neurologists have been cautioned on the use of the MS treatment Lemtrada; while the EMA undertakes their review of side effects in some European patients.

MSWA uniting the community to support people living with Parkinson’s Disease

MSWA is proud to continue its commitment to raising awareness of Parkinson’s.

Read how MSWA is supporting Western Australians who have been touched by the condition.

MSWA & WASO Connecting Young West Australians to Healthy Brain Stimulation

Young people in Western Australia will have greater access to the proven benefits of classical music, thanks to our partnership with the West Australian Symphony Orchestra (WASO).

MSWA Funded Brain Plasticity Research Offers Hope for Neurological Conditions

Using brain plasticity to repair a damaged brain is the underlying goal of research undertaken by Perron Institute researcher Associate Professor Jenny Rodger.

Scientists seek evidence about diet and progression of MS

Can diet affect multiple sclerosis? Dr Lucinda Black, MSWA funded researcher shares her latest research into patterns between the intake of specific foods and nutrients, and whether they contribute to the risk of MS.

WASO announces unique partnership with MSWA

MSWA is thrilled to announce our involvement with the West Australian Symphony Orchestra for their 2019 season. This partnership recognises a shared commitment to enriching the lives of young people and families through music.

New home soon for Kate in Butler

In 2005, Kate Gild was diagnosed with multiple sclerosis (MS) when she was 33-years-old. She was living in London at the time and home in Perth on holiday visiting family, when she started experiencing nerve pain in her wrist. Kate thought it was Carpal tunnel, but an MRI revealed it was MS.

MAVENCLAD® (cladribine tablets) for RRMS Australian Government approves PBS listing

Read the full announcement here.

Australian AHSCT Trial Results Released

Results into an Australian study of the treatment autologous haematopoietic stem cell therapy (AHSCT) were released earlier this week.

MSWA provides grant of $200,000 for research into motor neurone disease

A $200,000 grant from MSWA will support research into proteins linked to the progression of motor neurone disease (MND) as well as a ground-breaking national study into the needs of carers and families of people experiencing end-of-life care and bereavement.

New premises in Belmont for MSWA in 2019

As MSWA continues to support people living with all neurological conditions, the need for a more tailored and larger premises has been welcomed by the MSWA community, which benefits from receiving support from over 750 staff within the organisation.

Taking a chance with Huntington’s Disease

Foresight is a gift worth treasuring because it allows one to know what the future might hold. Andrew Francis often circles this concept when thinking about how different his life could be. From a young age, he knew about a hereditary gene that might, or might not affect his life, and future generations. It wasn’t until 2002 that Andrew got his answer.

Important message about MS medication Lemtrada®

The U.S. Food and Drug Administration (FDA) has issued a warning about the MS medication Lemtrada® (alemtuzumab).

Dynamic duo to tackle MSWA Ocean Ride

Jessica Allen, an Australian professional cyclist, spends half of the year living in Italy, racing in the Union Cycliste Internationale World Tour across Europe, and the other half competing in Australia. She knows all about what it takes to be a successful cyclist and hopes to win gold for Australia at the next Olympic Games. However, amongst her busy schedule, Jessica always finds time to ride in the annual MSWA Ocean Ride - Powered by Retravision.

MSWA supporting stroke survivors

Lisa MacLennan was 41 and in the prime of her life. She was married with two young children, working in the disability sector, and two units away from completing a Bachelor of Social Work, when she was struck down by a severe stroke in 2012.

Tours and a ‘cuppa’ on offer at MSWA Bunbury
Open Day to help people with their NDIS plan

Winner, winner, chicken dinner was Nicolette Murphy’s initial response after recently attending an NDIS information session organised by MSWA at the Clarkson Library. The 48-year old who was diagnosed with multiple sclerosis in 2010 said the session with MSWA’s NDIS experts was more than she’d expected.

NDIS Help is at hand at Wilson Open Day

As the National Disability Scheme (NDIS) continues to roll-out across Perth and the South West, MSWA is holding an open day at its centre in Wilson to help people with their NDIS plans and showcase its latest renovations and upgrades.

Decision to recommend MAVENCLAD®

MAVENCLAD® (cladribine tablets) has been recommended for listing on the Pharmaceutical Benefits Scheme (PBS) for relapsing remitting MS (RRMS), by the Pharmaceutical Benefits Advisory Committee (PBAC), subject to final approval by the Federal Health Minister.

Local Biomarker research a key part of MSWA's record $3 million investment

For the thousands of Western Australians living with multiple sclerosis (MS) new treatments offer hope and relief. But for clinicians it’s often challenging to know if a particular treatment is working.

World MS Day, bringing us closer

Fatigue and blurred vision were the first signs for Chloe Baker that something wasn’t right. In 2017, the 31-year-old moved home from New Zealand to be with her family and focus on her health. An eye test led to an MRI, and then a diagnosis of multiple sclerosis (MS).

Subsequent decision not to recommend MAVENCLAD®

The Pharmaceutical Benefits Advisory Committee (PBAC) have announced they have not recommended the listing of MAVENCLAD® (cladribine tablets) for relapsing remitting MS (RRMS) on the Pharmaceutical Benefits Scheme (PBS).

MSWA supporting people living with Parkinson’s

For two years Kent Piercy developed an increasing stiffness and slowness in both arms and a reduced swing in his right arm. Naturally concerned about these changes, Kent saw a neurologist early last year, and at the age of 74 was diagnosed with tremor-dominant idiopathic Parkinson’s.

New UV research gives hope to people with MS

Fatigue and blurred vision were the first signs for Chloe Baker that something wasn’t right. The 31-year-old moved home from New Zealand to be with her family and focus on her health. An eye test led to an MRI, and then a diagnosis of multiple sclerosis.

$1 million research funding into brain plasticity

How the brain works has intrigued Associate Professor Jenny Rodger for almost 30 years, with a lot of her work focusing on brain plasticity – the ability of the brain to change throughout someone’s life by rewiring or modifying neural connections.

Voluntary Worldwide Withdrawal for ZINBRYTA ®

Pharmaceutical companies Biogen and AbbVie has announced the voluntary worldwide withdrawal for ZINBRYTA ® (daclizumab) for Relapsing multiple sclerosis.

Ocrevus ™ (ocrelizumab) listed on the Pharmaceutical Benefits Scheme (PBS)

Ocrevus ™ is used in relapsing remitting multiple sclerosis (RRMS) and this morning, the Federal Government announced the listing of the drug on the PBS.

Golden Girl honoured with Order of Australia

Legendary Australian track and field Olympian Betty Cuthbert, AM, MBE has been posthumously honoured with a Companion AC in the General Division of the Order of Australia for eminent service to athletics at the national and international level, particularly as a gold medallist at the Melbourne and Tokyo Olympic Games, and as a role model, fundraiser, and advocate for research into finding a cure for multiple sclerosis (MS).

WA researcher finds UV delays onset of MS

In a world-first, a Perth Professor has delayed the development of MS in high-risk individuals using narrowband UVB treatment, something used to treat the skin condition psoriasis. Trials conducted by Professor Prue Hart found that in 3 out of 10 people, with a single episode of MS who were treated with UVB, the progression of their MS was halted.

WA to join the NDIS in 2018

It was announced today that Western Australia will join the federally-funded National Disability Insurance Scheme (NDIS), replacing the WA-based scheme set up b the former Government.

Governor visits MSWA Centre in Bunbury

Western Australian Governor and MSWA patron, Her Excellency the Honourable Kerry Sanderson AC, recently visited the organisation’s $1.5 million Community and Health Services Centre in Bunbury. The new state-of-the-art Centre is a one-stop shop for the 200 people with multiple sclerosis and other neurological conditions and their carers living in the region.

MSWA funds stroke protection research

In 2009, Lyndee Aspey was struck down by a stroke that left her confined to a wheelchair and with slurred speech. Once living in a nursing home, surrounded by people much older than her, Lyndee is now one of 10 full-time residents at Fern River, a high-support accommodation facility managed by MSWA.

MSWA invests record $2.6m into research

For the past two years Dr Marzena Fabis-Pedrini has been conducting research into multiple sclerosis at the Perron Institute, supported by funding from MSWA. Dr Fabis-Pedrini’s latest research focuses on benign MS and people who have low levels of disability as a result of their condition.

New $1.5m MSWA Centre officially opens in Bunbury

Just over 18 months since the first sod was turned, MSWA’s $1.5 million Community and Health Services Centre in Bunbury was officially opened today by Disability Services Minister, Hon. Stephen Dawson, MSWA President, George Pampacos, MSWA CEO, Marcus Stafford AM and Bunbury Mayor, Gary Brennan.

MSWA Pays Tribute to Golden Girl

MSWA CEO, Marcus Stafford AM has paid tribute to legendary Australian track and field Olympian Betty Cuthbert AM, MBE, who passed away at a nursing home in Mandurah. Ms Cuthbert was 79 years old and had been living with multiple sclerosis since 1969.

MSWA is proud that we undertake all of our own fundraising activities.

MSWA provides a wide range of vital healthcare services and support to Western Australians living with MS and other neurological conditions. This is made possible due largely to the money raised through our own fundraising activities.

MSWA CEO honoured with Order of Australia

MSWA CEO honoured with Order of Australia.

MSWA an ‘angel service’

When Anita Gamba was diagnosed with multiple sclerosis in 1989, she says virtually nothing was known about the neurological condition.

MS Awareness Week - MSWA Members’ Forum 2017

Bringing people living with MS and experts face to face

Blind ambition to climb Central Park

For most of us, spending a Sunday morning climbing 1,103 steps to the top of Central Park is a daunting task.

Zinbryta now available on the PBS

On May 1, the Australian government announced the inclusion of Zinbryta (daclizumab) on the Pharmaceutical Benefits Scheme (PBS) for the treatment of relapsing remitting MS.

New partnership with the Perth Symphony Orchestra announced

MSWA is delighted to announce a new partnership with Perth Symphony Orchestra (PSO) for their inaugural Perth Chamber Orchestra Heritage Series.

MSWA Community and Health Services Centre, Bunbury

MSWA are proud to announce that the builders of our new Community and Health Services Centre in Bunbury, Farnell Constructions, have won the 2017 Building Excellence Awards for Commercial Industrial Buildings Under $2,000,000.

MSWA to build new northern suburbs facility

MSWA is excited to be developing a new Member Services facility in Perth’s Northern Suburbs in the community of Butler.

MS research breakthrough

Last week marked the announcement of one of the most significant advances in understanding multiple sclerosis and we are delighted to share this news with you.

MSWA to invest a record $2.2m into research

MSWA has cemented its place as Australia’s largest investor into finding the cause and cure for multiple sclerosis. This year the organisation has committed a record $2.2 million to fund local and international research.

MSWA awards Pharmacy 777 for their ongoing commitment

MSWA awarded Pharmacy 777 with its Business Commitment Award at the 2016 MS Dinner Auction held in August.

NDIS to be rolled out a year later in WA

The rollout of the National Disability Insurance Scheme in Western Australia has been pushed back to mid-next year - 12 months later than the rest of the country - but the trials will be expanded.

MSWA Ambassador Josh Kennedy paying forward

As part of a new AFL Players’ Association initiative, ‘AFL Players Care’, MSWA Ambassador Josh Kennedy and his West Coast Eagles team mates have donated $5,000 to MSWA.

Generous donation received from cultural event organisers

In October last year, Lalit Doolabh and his music band, Sweet Melodies, organised a community fundraising event – Navrang - to celebrate the Hindu festival Navrati.

MSWA announces successful applicants for inaugural Research Funding Round

The Multiple Sclerosis Society of WA (MSWA) has a long history of providing significant financial contributions to Australian MS research efforts into finding the cause, better treatments and a cure for multiple sclerosis (MS).

Wife's MS diagnosis inspires generous donation

Charles Sweeney, General Manager of Mining at Civmec Construction and Engineering, has been working with his division’s contractors and suppliers on a raffle to raise money for MSWA. He had a goal of $10,000 and managed to beat it raising an impressive $10,400!

Study to test impact of chocolate on MS related fatigue

As part of the trial, forty people with MS will consume a hot chocolate drink every day over six weeks.

Josh named All Australian

Multiple Sclerosis Western Australia (MSWA) Ambassador and West Coast Eagles forward, Josh Kennedy, has been selected in the Virgin Australia all-Australian AFL Team.

MSWA Commitment Awards

The Multiple Sclerosis Society of Western Australia (MSWA) hosted the annual MSWA Dinner Auction at the State Reception Centre, Fraser’s, Kings Park on Thursday, 6 August 2015.

New MS treatment available on Pharmaceutical Benefits Scheme

Lemtrada® (alemtuzumab), a new therapy for people living with relapsing-remitting multiple sclerosis (MS), will be available on the Pharmaceutical Benefits Scheme (PBS) from 1 April 2015.

Stomach Ulcer bug may protect against MS

A West Australian team has found evidence that the stomach ulcer bacterium, Helicobacter pylori, is associated with a lower risk of multiple sclerosis (MS), bolstering evidence for the role of the ‘hygiene hypothesis’ in autoimmune disorders.

Young Carer Finalist

Living with multiple sclerosis (MS) can be a challenge, but when you have the support of your family and friends, it makes the difference between wanting to fight, and the thought of giving up. For Branka Smiljanic, the support of her 11-year-old-son, Alexander Tanasijevic, is Branka’s reason to fight.

Members take out Canning Show prize

On 31 October, five very talented MSWA Members were brave enough to put their handiwork up for scrutiny in the 2014 Canning Show. Mosaic tiles, paintings and flower arrangements were among some of the submissions and if they were nervous about how they would fare, the results proved that they didn’t need to be.

New MS research projects announced

There is good news in the MS research world, as the National Health and Medical Research Council (NHMRC) has announced new research projects that will receive funding from 2015. Of these, four are new MS research projects which will benefit from this funding over the next three to five years.

Onwards and upwards – MS Members move to bigger premises

When one door closes, another door opens.

Fortunately, a much bigger door has opened for the Members of the Multiple Sclerosis Society of WA (MSWA) as they bade farewell to Seabrooke House in Rockingham after almost 19 years and moved into a newer and larger premises on Council Avenue last Friday.

LED upgrade lighting for Wilson facility

The MS Society is proud to announce the upgrade of its Wilson facility with energy efficient lighting technology. This activity received funding from the Australian Government and encapsulates the installation of 376 new LED lights throughout the facility.

Lemtrada (Alemtuzumab) recommended for the Pharmaceutical Benefits Scheme

Alemtuzumab, to be marketed as Lemtrada, is the latest drug treatment for people with relapsing remitting MS. It was approved by the National Health Service in the UK, and we have just received news that it has recently been positively recommended by the Pharmaceutical Benefits Advisory Committee (PBAC) in Australia for the Pharmaceutical Benefits Scheme (PBS) subsidy.

Yoga and Multiple Sclerosis

"I took part in my first yoga class twelve years ago. I hated it! I vowed to never go back”,remembers Kelly Nichols, a yoga instructor who has been teaching yoga to Members of the MS Society of WA since 2013,“twelve years on and here I am…a yoga teacher!”

Perth Members Forum Wrap Up 2014

Research, robotics and reminders of the importance of self-care were the topics explored with the one hundred and twenty attendees at the Multiple Sclerosis Society of WA (MSWA) annual Perth Members’ Forum held in South Perth on Wednesday 4 June.

A grand holiday for MSWA Members

May was the month of formal attire, live entertainment and exquisite dining for our Members at Wilson Outreach. The Centre was transformed into the MS Cruiseliner for all its Members (and care support staff) to enjoy a spirited holiday without the price tag or overnight bag. Activities such as bingo, bowling and high tea kept the holiday energy moving despite the stormy weather outside. Off shore excursions to the cinema were included in the package.

Increasing treatment options for people living with MS

Medical treatment options to reduce relapse rates and slow the progression of disability in relapsing remitting multiple sclerosis are becoming available at a rate never before seen in Australia. Recently, Members of the MS Society of WA in the South West, were presented with current and future options that may alter the course of their disease at the annual Bunbury Members’ Forum.

Vitamin D & MS

The power of Vitamin D to potentially reduce the risk of getting MS and influence disease progression of multiple sclerosis is gradually being revealed through the work of Australian researchers such as Professor Bruce Taylor and his colleagues at the Menzies Research Institute, Tasmania. Professor Taylor, a Professional Research Fellow at the Institute, recently visited Perth to provide an update on the latest findings regarding the role of vitamin D in MS, to MSWA Members and health professionals.

MSWA Volunteer awarded Citizen of the Year

George Leathley has been a volunteer at the Multiple Sclerosis Society of WA (MSWA) for almost nine years, alongside his wife Jeanette. George also volunteers for the Gosnells Football Club and the Addie Mills Centre.

New medications added to PBS

Two new oral disease modifying treatments for relapsing-remitting MS (RRMS), Tecfidera and Aubagio, will be listed on the Pharmaceutical Benefits Scheme in Australia as of 1 December, 2013.

MSWA appoints new President

George Pampacos has been appointed the new President of the Board of Directors for the Multiple Sclerosis Society of Western Australia (MSWA). Prior to this appointment, George had been on the MSWA Board for four years.

Get your ticket now

Tickets are now on sale for the Multi-Choice Raffle. You've got to be in it to win it.

The home stretch

We’re excited to announce the completion of building works and landscaping, at the new Hamilton Hill facility.

Sound the Siren-Rock for MS

To purchase tickets to this event, and help raise funds for MSWA please click here.

Another record contribution

For the second successive year, the Multiple Sclerosis Society of WA (MSWA) is delighted to have been able to contribute more than $1 million towards research to help find the cause and cure for MS.

A huge honour for MSWA Board Director

One of Australia’s most prominent neurologists, and Board Director at the Multiple Sclerosis Society of Western Australia, Professor William Carroll, has been appointed to the highly prestigious position of First Vice President of the World Federation of Neurologists (WFN).

They rode for MS

On Sunday, 20 October, more than 2,000 riders took to the coast in the annual Hatch Ocean Ride for MS. Riding from Fremantle to Hillarys in either the 10, 35, 50 or 70km rides, participants also raised funds along the way to help us reach our target of $300,000.