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Motor neurone disease

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A diagnosis of motor neurone disease (MND) is a challenging milestone for anyone to face, but understanding the condition is an important first step toward managing and planning from the early days and as the condition progresses. It’s also important for carers and people closest to the person to be well informed about MND and to receive advice and support from the outset.

The Motor Neurone Disease Association of WA (MNDAWA) provide additional information to people living with MND and their family and carers.

Support programs

It can be very beneficial to join the various support programs available for people living with MND and their carers and families.

Whether talking to someone one to one, or in group sessions, the opportunity to discuss your challenges and concerns, exchange advice and tips and just sharing a cup of tea or coffee with someone experiencing the same condition, can make a positive difference to your outlook.

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Equipment and therapies for people living with MND

Physiotherapists and occupational therapists can assess your condition and needs and provide therapies and assistive technologies to help enhance your day-to-day living.

Mobility aids can help you get around at different stages of your condition. These devices range from walking sticks and frames to wheelchairs and hoists.

Other assistive technologies can help you maintain your range of activities from communicating to reading and using a computer.

For day-to-day self-sufficiency, modified cups, plates and cutlery are available, along with special cushions and chair supports.

A physiotherapist may develop a program of exercises to perform in a gym or at home to help you maintain your range of movement of the joints, reduce stiffness and discomfort.

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MND and driving

You may be able to continue driving after a diagnosis of MND. It is advisable to check with your treating physician.

The Department of Transport of Western Australia requires drivers to report certain medical conditions. It may be necessary to undertake a medical assessment before your licence is renewed. To find out if you are required to report a diagnosis of MND, check with the Department.

It is advisable to notify your insurer of your condition.

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MND and working

Whether your personal situation sees you staying in your current job or finding appropriate new employment, we can help you succeed at work. Many people living with MND hold fulfilling positions within workplaces and can continue to work with some adjustments to their working arrangements and setup. MSWA's free Employment Support Service can individually assess and support you to succeed at work.

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If you’re living with MND, MSWA’s multidisciplinary team of caregivers, including physiotherapists, speech pathologists, dietitians, occupational therapists, counsellors and social welfare specialists provide a wide spectrum of services and support to help you get the most out of life.

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If you'd to find out more about how MSWA may be able to help you, please complete the form below and one of our friendly team members will be in touch.